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Abstract

PURPOSE: Amyotrophic Lateral Sclerosis (ALS) is a neurodegenerative disease that ultimately requires a power wheelchair (PWC) as the main source of mobility. The purpose of this project was to determine the effectiveness of an educational video to prepare a client for a PWC assessment by addressing four themes: PWC features, home environment, transportation, and client self-efficacy.

METHODS: An educational video was created and used in an ALS Multidisciplinary Clinic to better prepare clients for the PWC evaluation process. The effectiveness of this video was measured using a seven-question Likert scale survey focusing on the themes of the video. Individuals living with ALS answered the survey before and after viewing the video, and gave feedback regarding the video prior to their PWC evaluation.

RESULTS: Following the video intervention, Wilcoxon signed-rank analyses showed there was significant improvement across all four themes: improved knowledge of PWC features (p < .001), improved understanding of transportation options (p = .017), improved understanding of potential home modification needs (p = .027), and improved feelings of self-efficacy in the PWC process (p = .001). Each theme had a mean increase of three or more points following the video, and Cohen’s d effect sizes were large for all four themes.

CONCLUSIONS: This study demonstrates the effectiveness of the educational video intervention in improving the knowledge and understanding of the PWC evaluation process for individuals living with ALS. Increased knowledge and feelings of empowerment could lead to improved acceptance and usage of a PWC, and enhanced quality of life.

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